Thank God we have Jazz Fest…

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(mid Dave Matthews set 1st Weekend. EPIC)

started this post last week –

Its been a crazy freakin’ upside side down and right side up again kind of week here in 08033. Superman is currently rocking out to Anders Obsborne in the other room, windows open, sun shining on him. Perfect Thursday evening -in preparation for the Lettuce show at The Blockley – he told the doctor the other day “music is my medicine” Making memories and laughing with your friends is what we ALL live for! He’s so right.

Music has been so much for us through our relationship – totally our common bond. It’s been so great to get out and about with our gang. “Thank God we have Jazz Fest.” and the days preceding and following it. The days we count down the days, and the days we recap it. Luck us, getting to Jazz Fest this year, lucky us! Sometimes you just need a care free soul filling weekend away in the sun, or in our case the driving pouring rain- to put it all in to perspective and remind you- life isn’t about passing the storm, it’s about dancing in the rain. Nothing better than gettin’ down with your friends!

Good thing too, because just after the most fun week ever – came the least fun week ever. (although I hear the Hurley’s pool party was pretty awesome!) Here you have it.

five radiation treatments

1 3 hour chemo sit

1 clinic visit with his radiologist

1 appointment with Dr/. Langer

1 emergency room visit

1 night stay in the hospital

1.7 liters of fluid drained from his right lung (and again 1.5 more)

1 chest xray

2 MRI’s

to fill you in:

with all this tests, we’ve found more cancer, in more places, but when Dr Langer is involved, there’s a plan. Superman’s in a pretty bad rough patch, there’s not been such good news this week, and he’s feeling really crappy. God willing, it’s going back uphill soon. We’ll be hanging on the porch this week, listening to music pretending we’re in New Orleans – if you’re in town, stop over! It’s a GAME ON! kind of week.

love and light,

xxN

9 thoughts on “Thank God we have Jazz Fest…

  1. Hi Nicole
    Gee, I wish we could ‘just pop over’ and hang on the porch with you this week. Please let Dean know we are sending him lots of love as you do to you and the girls! You are all in our thoughts and hearts on the other side of the world.
    Love love love Angie Scott Isaac Jonah and Oli xxxxxx

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  2. The amazing strength that you and your family have is incredible. I know that the attitude that you keep and the laughs that you all have with your loved ones keep you all going. It seems that you continue to have lots of laughs and are just “living your life” and creating incredible memories!!! Love reading about them. Lots of prayers to all of you.

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  3. Don’t know you personallybut sending your family healing love and light! From a former Jersey girl! Your words are so inspirational!

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