What Makes You Feel Alive?

I was sorting through my google drive this morning, and came across some writing of Dean’s. There were so many lessons we learned through his suffering. So many practices we put into place to make the most of the time we had together. Always keeping things on the bright side. I would often fire questions off to him or give him homework assignments when I saw things looking down. Dean was a little dark if you let him slip. With time against usI felt it imperative to keep focused on what could make us most happy. Here’s a good one: a bit of his writing, and a bit of my edit. Sort of like a ghostwriter in the realest sense of the term. I hope it brings a smile to those who miss him most and gives everyone else a sense intention on this summer like hump day in New Jersey. 

What makes me feel alive?

(Ok so let’s do it different. Not sure sure how many times I’ve said that but Nikki gave me an assignment so let’s try it)

I feel alive when:

Dropping in and a backhand Indo barrel at Ulus (I guess it’s finding your edge…the limit…when you are pushing the being alive part)

Surviving the next set of scans

Seeing the sun, feeling the sun, being in the ocean facing your fears

To feel alive. Facing your fears and challenging them. Know your physical limits – however that’s not your limiting factoryou’re only limiting factor are your excuses.

Being in California:

Things are green here (California) I like that. You can grow things in your yard and eat them. I like that. This happens all year long. I like that. 

They have all three seasons in one day. Just be prepared. 

Sitting in the kitchen with Nikki and Hil while they talk, cook and laugh. That makes me feel alive. The little things, Bearing witness to the moments. 

Setting expectations: realistic expectations and prioritizing what is most important:

“Dads are supposed to be brave. Consider the things you want to pass on to your kids.Set a good example. Promote honesty and ask if you don’t understand. Be kind and be strong! (strong like bull) try and hear more than say more, try to feel more and Pray some too.  – I worry I wont be able to instill all the lessons I want instill in the girls. Life is fleeting. Make a list. Face that truth – create action around it. That makes me feel alive. Intentional living.”

Seizing the moment: 

“New break. Love seaside Cardiff by the sea. Today had it all. Little rippers Jersey style and John was getting Gianna and Fia in on some bombing rights. As I sat with Nick grabbing this little left on the corner of the channel with a perfect view of the girls ripping down the line working on their backhand. They probably had 5 years of East Coast experience in two days. Wish I had a Go-pro for me it was fantastic to experience for real. For my girls this will probably not be as memorable as some future trip.”

These are the literal – alive which is a good start – and certainly are actual as they are personal challenges that allow us to learn about ourselves and what we do. 

In the past few days, I’ve had several people ask when I will get back to teaching yoga. My response has been : I’m not ready. I have no words. My yoga has been life these days as it actually always is. The practice of Yoga (Asana) arms us with the tools we need to face our everyday challenges. The work we do on our mat, we take into our lives. 

What Makes You Feel Alive? A question I will often raise while keeping a room in the most difficult pose : the long warrior holds (for those of you have have often been in my class) rooting down through your right big toe mound, widening your foot and peeling your arch from the floor. Grounding the blade of your left foot behind you, energizing you quads, softening your knees, dropping your shoulders, lengthening your neck, while staring down your right middle finger and growing your arms by an inch or three.

Facing Adversity. Reminding ourselves what we’re up to. 

What Makes You Feel Alive? 

 

 

Monday, Monday…

0b712aee4e58799c5702168fd62d7f66This one really struck me today. Nothing like a rainy Monday at a clean desk, after a full weekend of exactly what I love to get me in thinking. Plus my writing playlist is just rediculous. Actually I think it might’ve started sitting on Lea’s counter Thursday night, either way.

The New Year seems to have brought me a deeper sense of grounding and longer moments of “I think I just might be OK, I may survive this.” Although at times, it feels like new levels of grief, but in very short bursts, so that’s an improvement. It’s hard to fathom that a year and a half later this is all still unfolding.

Christmas was a process. A constant up and down, for all of us. We survived, had some magnificent surprises, and have a clearer picture of how to approach all that holiday stuff moving forward. I sent half the cards that I intended to this season, so if you didn’t get one, I either don’t know any part of your address by memory, or you are in the last third of the alphabet. That was something that went out the window with Dean’s diagnosis, the urgency and need to do everything “right” at Christmastime, and although it’s left a stack on my desk, it’s a welcomed change for sure.

The last few months I’ve learned to know when it’s real grief versus getting stuck. I can say with surety, when it’s real, its real. I’m just trying to figure out what to take from those moments, other than the energy moving through my body. Maybe that’s what it is to feel someone’s presence. It’s been the biggest gift of my yoga practice lately, an intuitive tunnel – straight to the other side. Crazy really.

I understand what’s nurturing feel good, versus escape – which I can see would be a very slippery slope to most, it’s an easily blurred line. I am blessed to be surrounded with a family of people, who let me go, and reel me back in. It’s something Dean was very very good at. Letting me flutter – a much appreciated super power.

Fairytale Land is great, the running and traveling, front row, late nights, silly summer outside dinners, beach days way past sundown, and yoga for days on end. Everything that I do to FEEL alive. I love that world, and I am a champion of justification, so there’s that. But Reality has been pretty OK lately too. This weekend in particular – lots of down time, kid time, cleaning out, dinner, music, gathering our beautiful teachers, breaking bread and a wonderfully “normalish” sunday complete with meatballs, football, good people and the Golden Globes in bed with my shorties. Glimpses of possibility and a familiar ease to life – a balance between my many worlds. home.

I’ve had the space to connect and reconnect with so many, slowly, easing my way back in to the swing of things. Back to the more familiar me. Thank you for your love and patience. Really truly, I don’t know what I would do without you. It’s been an incredible journey.

Heading into this year with my feet on the ground a bit. It feels good. My big focus for the first quarter will be developing the studio, our Fishtown Community and an excellence of balance with the girls (which right now feels like some concentrated travel time, somewhere sunny, sometime soon) more writing and more reading, replacing the heater and finishing the dining room. Funny list, right? It seems I am moving forward with a greater understanding that something new is being born, for all of us – and it feels nice.

Looking forward to many good days to come, and truly wishing you all a New Year filled with magic. May even your rainy days be bright. x

Damn. That Was a Small Window

soulrebels

Sometimes it seems as if we’ve become experts in seizing them moment, especially recently. What could easily be a highly emotionally charged predicament is a business for us now. We gather the information, analyze the situation, come up with a plan and execute it in the least invasive way possible. Dean’s drive and commitment to his family, his work his teams and his music have gotten him up and out on days where most of us would self medicate and waste the day away. When God gives us a window of time when we don’t have to react, we take it.

This was the case, two weeks ago, just after his last round of hard core chemo, side effects in full swing.  On a whim – well as far as he knows – we were swept away to New York, with the best of friends, to escape the recent news, and soothe our soul. He totally rallied, with a smile. It was a blink of an eye, our night at Brooklyn Bowl – The Soul Rebels, John Medeski,  laughter, dancing, and even a few strikes in the lanes. We’ve never been bowling together. Dean “can’t bowl” after his motorcycle mishap a lifetime ago. Dean cant bowl – ha! I think he ended up wining the game. Just another superpower he has under that cape. It was an awesome night, I might even venture to call it epic, we were all in agreement. There’s something magical about spending time with Dean, his passion for life is contagious, and it’s a true reminder of how we should all be living in the moment, sharing our hearts and spending more time with people we love, doing what we love.

(Oh – and Brooklyn Bowl – Holy Moly! That gang couldn’t have been more hospitable. If you ever get a chance to see a show there, do it! I think it might be one of our favorite music venues ever, second only to The Fillmore in SFC.)

So- the latest news. While the docs have been pleased with the results of this knock ‘em sock ‘em chemo cocktail he’s been withstanding for five or so months- there are a few tumors growing at a faster rate than we’d like, and a change is in order. We thought he’d get a break- maintenance chemo for a few weeks, but unfortunately that’s not the case. As I write this, he’s in recovery, post biopsy, to gather more molecular data. The sample will be sent across the miles, and we’ll wait (a few weeks) for the lab to report their findings. In the meantime, he’ll be on a new regimen, IV chemo every three weeks- a definite improvement over the 3 hour weekly sit he was withstanding for the last 30 weeks. On April 1st, he’ll begin seven weeks of radiation to his lugs, five days a week. Ugh. it will certainly prove to be a challenging Spring, but nonetheless, one filled with soccer games and family dinners, longer days, lots of music, magic, rebirth, and a quick hit of NOLA love late April.

In the meantime – we have a few fun things on our schedule and would love to see you out there with us!

Up for a party? Join us on Saturday March 16th at The Princeton in Avalon as Dean and some of the local fellas jam at the Kanen Keating- Wear Cancer Benefit. Kanen aka “Hurrikanen,” is a courageous, free spirited, full of love 5 year old boy from Cape May County who was diagnosed with cancer early this year. We know all to well what a long road it’ll be for little Kanen and his family and are honored to support this little guy in his fight.

Secondly, the For Pete’s Sake walk on March 24th. Unfortunately, we’ll be out of town this year, but this is an organization very close to our hearts. It’s an awesome day at CItizen’s Bank Park and the kids get to run the bases! If you want to join the fun, connect with Jessica, she is heading up the Tough Dawgs team again this year. For more on For Pete’s Sake, click here, you might recognize Superman in his plain clothes!

We’re also training for Broad Street Run, a wonderfilled ten miler through or favorite City of Brotherly Love. The girls are running with us this year, along with 20 or so of our best hometown posse. We seriously would be lost without this crew not to mention all the support we have showering us from coast to coast.  Dean has a race bib, we’ll see how he feels.  If you see him out there, hittin’ the streets – give hime a holler or a high five, and know it must be a very good day! Either way, we’ll run with him or for him, but it wouldn’t surprise me if he pulls it off again this year.

Ok- that’s my long winded story for today, and my therapy for the week. His surgeon just came out to report that they got what they needed, and he’s waking up slowly, Special Prayers and Blessings to the doctors and nurses here at Penn. Their care and passion for their work are unmatchable. And he’s awake. We are so blessed. xxN